Sunday, December 11, 2011

Limbo

So, we thought that we were heading somewhat the right direction... but it turns out that Christian's heart is just not ready to work all of the way. A cardiologist came in this morning and told us that he is still mostly pumping a junctional rhythm pattern... which looks like this:
After every QRS wave is only the T wave. The QRS wave is the high, pointed spike, the T wave is the little hump that follows. Before every QRS is supposed to be a P wave, similar to the T wave. Normal rhythms look like this:
Small P wave, the QRS spike, then the T wave and start over... Unless you're Christian.

So, they are keeping a very close eye on him and have started discussing more, the option of a pacemaker being implanted permanently. Please send HUGE prayers his way as this would mean yet another open-heart surgery and Christmas and possibly New Years in the hospital away from home.

Other than that news, the chest tubes are still in, but producing less and less fluid every day. Christian's attitude and outlook are getting brighter as each day passes. He smiles more, makes jokes and is actually playing his IPOD again! To anyone who truly knows him, you know he is glued to that thing!

So, we are still here and trying so hard to get him well enough to go home. It is proving quite the difficult task. He has also started to actually feel homesick and will start crying saying he wants to go home. My heart brakes knowing how badly he misses feeling normal. I am going to venture out tomorrow and find a yoga studio so that I can get a little stress relief and work on making myself feel as close to normal as possible. Please keep us in your thoughts, but mostly pray for Christian's peace of mind and quick recovery.

 Playing with the Air Life Helicopter 

Another smile!



1 comment:

  1. Hey Nicole, I ran across this blog from HLHS and other people with pacemakers. Weird as it sounds, some of them found peace of mind with their kids having one.

    http://www.pacemakerclub.com/public/jpage/1/p/story/a/storypage/sid/6669/content.doc

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