Tuesday Evening

Sorry it took all day for me to post, but we had a very big day. We started out with the removal of his atrial monitor line that sat in his atrium and threaded out of his chest. Then he ate a few bites of soup, macaroni and chicken strip followed by a few sips of soda. After that, he needed his oral meds...and he threw up EVERYWHERE! So, we decided that it was a good time for physical therapy to come in and get him up for a bit so we could do a bed change.

It was a process to get him up and he was not very excited about it, but once he was up, he enjoyed sitting for a bit. Then it was time to get back in bed and get another tube removed! The giant tube coming from the middle of his chest was removed! Yay! Shortly after that, the arterial line in his wrist was removed as well. What a busy day he had. He is now resting comfortably in bed and sleeping for the first long period of time today.

They are going to run some more blood tests and a urine screen. His last blood draw came back with a high white cell blood count indicating possible infection. Cross your fingers that all will come back normal. He is finally losing more of the fluid that has built up in his tiny body. His pacemaker is now only doing half of the work for him. That was such great news to hear. Please keep praying that his heart continues to get stronger.

Thank you all again so much for checking in. I will be sure to keep you posted, just keep checking in!

 He was NOT a fan of the pink pajamas they picked out... neither was I. 

 Sitting up! 

 And he's in the chair!

 So many tubes still :(

 A big thumbs up for this milestone!

 Return of the faux hawk!

 We made the one-armed, barefoot, pig nosed safari bandit!

The scowl that he has been giving all of his nurses, doctors and specialists. So charming.