The Monday Blues

Christian's pain levels really went up throughout the night. He is very tired, sore and continues to drain copious amounts of fluid from his chest. His heart is still completely relying on the pacemaker. The doctors said that if he is still needing it next week, that we might be looking at needing a permanent pacemaker placed... ugh! But, they said to not worry about that right now and just focus of getting his feeling better. His liver is very swollen as well, but again, very common after this big of a surgery.

We had a wonderful guest come today and play the harp for a while. It was so beautiful and very calming. Christian's face went from a grimace to a relaxed and restful expression as he slept and she played. So, thank you to the Children's Cancer Association for visiting Doernbecher and sharing your beautiful music.

The plan for today is to just get his pain under control and then maybe work with physical therapy to get him mobile again... Not going to lie... I am not excited about that. he is in NO mood to be moved AT ALL... he has made that very clear.

So please, keep praying! They are being answered little by little. He is still very sick, but he is a strong willed and very determined little guy!

Love to you all,
Team Ruwaldt (the nurses gave us that name)

 Drinking his much desired soda!

 Just some of his bed buddies!

 The tangled mess of wires and tubes hiding behind the bed!

 Sleeping angel. 

 Goose bumps.

 His E.T. finger. 

 My point of view. 

 The harp music. 

Listening to the music.